Trisomy 13 & 18 Family Perspective with Wiley and Jenny Purcell (Part 1)

Trisomy 13 & 18—Family Perspective Wiley and Jenny Purcell

Participants

• Wiley and Jenny Purcell
• Zachary Hodges

All participants have no financial conflicts of interest to disclose.

Peer review by Dr. Paul Mann and the MCG Pediatric Podcast Committee

About our guests:

Wiley and Jenny Purcell have been gracious to share their story of their son Samul and their family’s experience with his diagnosis of trisomy 13. We are very excited to share their story!

Learning Objectives:

After listening to this podcast, learners should be able to better understand a family’s experience with:

1. A prenatal diagnosis of a life-limiting genetic disease
2. A newborn baby requiring neonatal intensive care.
3. Bringing a baby with complex medical needs home from the NICU.
4. Daily life with an infant with special needs.

 

Links mentioned:

SOFT—Support Organization for Trisomy; www.trisomy.org  

String of Pearls: http://www.stringofpearlsonline.org/

Cuddle Cot: https://www.cuddlingangels.com/

 

Thank you for listening to this episode from the Department of Pediatrics at the Medical College of Georgia. If you have any comments, suggestions, or feedback- you can email us at mcgpediatricpodcast@augusta.edu

Remember that all content during this episode is intended for informational and educational purposes only. It should not be used as medical advice to diagnose or treat any particular patient. We look forward to speaking to you on our next episode of the MCG Pediatric Podcast.