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The focus of the MCG Pediatric Podcast is to produce educational material on pediatric general and subspecialty topics that will be helpful in everyday clinical practice. These discussions will be led by our pediatric residents with a general or subspecialty faculty member who is an expert in the field.
Episodes
Sunday Aug 01, 2021
Sunday Aug 01, 2021
Trisomy 13 & 18—Family Perspective Wiley and Jenny Purcell
Participants
- Wiley and Jenny Purcell
- Zachary Hodges
All participants have no financial conflicts of interest to disclose.
Peer review by Dr. Paul Mann and the MCG Pediatric Podcast Committee
About our guests:
Wiley and Jenny Purcell have been gracious to share their story of their son Samul and their family’s experience with his diagnosis of trisomy 13. We are very excited to share their story!
Learning Objectives:
After listening to this podcast, learners should be able to better understand a family’s experience with:
- A prenatal diagnosis of a life-limiting genetic disease
- A newborn baby requiring neonatal intensive care.
- Bringing a baby with complex medical needs home from the NICU.
- Daily life with an infant with special needs.
Links mentioned:
SOFT—Support Organization for Trisomy; www.trisomy.org
String of Pearls: http://www.stringofpearlsonline.org/
Cuddle Cot: https://www.cuddlingangels.com/
Thank you for listening to this episode from the Department of Pediatrics at the Medical College of Georgia. If you have any comments, suggestions, or feedback- you can email us at mcgpediatricpodcast@augusta.edu
Remember that all content during this episode is intended for informational and educational purposes only. It should not be used as medical advice to diagnose or treat any particular patient. We look forward to speaking to you on our next episode of the MCG Pediatric Podcast.
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